Feeling overwhelmed, exhausted, stressed and frustrated by 2020? You’re not alone! It’s been a bumpy ride so far. Filled with uncertainty, new pressures, lots of unknowns and a lack of control, many of us are feeling anxious, upset and vulnerable. When you have a musculoskeletal condition and live with regular pain and fatigue, the urge to retreat to your warm, cosy bed and pull the covers over your head can be very tempting.
But you’re strong – you’re a mighty warrior living with a chronic condition/s. You can take control of the situation and do something proactive by examining your self-care plan. Ask yourself – “is my pre-COVID self-care plan realistic now? Or does it need updating in light of the changes to my world?”
What is self-care
Self-care involves the things you deliberately do to take care of your physical, mental and emotional health and wellbeing. It’s the things you plan for (e.g. water exercise classes, visiting your specialist) and you make time for (e.g. mindfulness, taking your dog for a walk, talking with a friend).
You often see articles about self-care with pictures of day spas, yoga retreats and people exercising on the beach at sunset. All wonderful things to do to take care of your health – but when you live with a chronic condition, and you live with pain and sometimes crippling exhaustion, life’s not that glamorous.
So to create a self-care plan for yourself that’s realistic and achievable during isolation, throw those ideas out the window and let’s get real. Start by recognising and appreciating the things that you can do right now.
Some mornings it’s all you can do to get out of bed, let alone shower. So the very basics of self-care involve good quality sleep, a nutritious diet, exercise, looking after your mental health and keeping yourself and your home clean. If you have family, then you have that added responsibility as well, especially at the moment if you’re home schooling while juggling work.
So wow – that’s already a lot! So let’s break it down into bite-size chunks
Get some sleep
Easier said than done I hear you say. But getting good quality sleep is crucial for our everyday functioning. If it’s an issue for you, especially at the moment, part of your 2020 self-care plan may be to look at ways you can improve your sleep quality and quantity. We have resources to help you – including nurses you can speak to on our Help Line (see details at bottom) and info on our website. Or if it’s a problem you feel you need extra help with, talk with your doctor (in person or via a telehealth consultation) to get professional help.
Eat a healthy, nutritious diet
While it’s tempting when you’re feeling crappy to eat foods you think of as comforting (e.g chocolate, cheese, ice cream, biscuits, alcohol) you need to enjoy them in moderation. While they may make you happy for a while, it’s only temporary. Too much of a good thing can lead to weight gain and other health issues. Eating a variety of healthy foods, in a range of colours (eat the rainbow) will make you feel better overall and will give you more energy. And on the days you’re feeling great, prepare some healthy meals you can pop in the freezer for the days you’re feeling lousy.
Exercise is so important when you have a chronic condition, but when you can no longer access your warm water exercise class or your tai chi group, finding a new exercise program can be daunting. If you’re looking online, it can sometimes be hard to judge if the exercise will help or hinder you. We’ve created some information about exercising during this time – including some tips about how you can stay active, as well as how to judge whether an online video or app is right for you. If you need some expert help and guidance, talk with your doctor about seeing an exercise physiologist, a physiotherapist or a sports and exercise physician. You can access them via a telehealth consultation or visit them in person.
Take care of your mental health
It’s really easy when you’re constantly surrounded by virus talk to become overwhelmed. Especially if you’re worried about your health, family, work and finances. And when you’re stressed and not looking after yourself properly, it can affect all aspects of your life including your family (and many of us are living in tight quarters at the moment), your ability to focus on work properly, sleep well, eat well…and so it becomes a vicious cycle.
The good news is there are lots of things you can do to look after your mental health during this time (read our blog for tips and strategies) including getting professional help if you need it. Again you can access the help you need in person or via a telehealth consultation. Talk with your doctor if you want more information about getting professional help.
But a really simple thing you can do immediately is to limit your exposure to all things COVID – pick a time when you’ll catch up on what’s happening – for example the evening news or morning bulletin – and then turn it off and tune it out.
Cleaning – plan, prioritise and pace
Cleaning – yourself, your kids, your home can be an enormous challenge. Hands up if there are days you feel like you need a nap after having a shower in the morning? It happens to most of us living with chronic pain at one time or another. For some more frequently than others. But the best thing you can do is to plan, prioritise and pace yourself.
Even before you get out of bed, while you’re lying in your cocoon, plan what you would like to do during the day. Maybe have a notepad and pen beside your bed, or use a note app on your phone and write it all down. OK, seeing it in one place, you can see that it’s a lot.
So now to the second P – prioritise. What are the things you really need to do? Do you really need to wash your hair today, or can you use the dry shampoo? Do you really need to vacuum the entire house, or just the living area? Do you really need to do 15,000 steps today, or do you need to take it down a notch. You know how you’re feeling on any given day – so plan, then prioritise.
Which then brings us to the 3rd P – pacing. Whatever you’re doing – cleaning, exercising, cooking, working, gardening, playing with the kids – pace yourself. It’s not a race – so be generous with your time, build in space for rest breaks.
And this brings us to the 4th P – peeing…after lying in bed thinking about all of this, you now need to rush to the loo 🤣
And finally, when it comes to cleaning – don’t forget hand washing. We need to do it regularly and thoroughly. We also need to be careful how we cough, sneeze and blow our noses. And avoid touching our face. Check out our hygiene 101 blog for more info.
Make time for the things you enjoy
When you’ve given the basics of your self-care plan some TLC and revised it for the current world, now take some time to consider other aspects of self-care. You may not have the time, energy or inclination to do these sorts of things most days, but schedule time to do the things that make you really happy, or relaxed, or pampered at least once a week – like a bubble bath, taking an hour to curl up with a good book, having a moment of peace and quiet in your garden to relax, doing a jigsaw puzzle, video chat with your bestie. We all need these moments to help us recharge, especially when life is so crazy and unsettled.
Contact our free national Help Line
Our nurses are available weekdays between 9am-5pm to take your calls (1800 263 265), emails (email@example.com) or messages via Messenger. So if you have questions about things like COVID-19, your musculoskeletal condition, treatment options, telehealth, managing your pain or accessing services – contact them today.
More to explore
- What self-care is — and what it isn’t
PsychCentral, 7 July 2018
- 6 ways to love your body on bad days with a chronic illness
- The importance of self-care with chronic pain conditions
Pathways, 20 November 2019
- 4 ways I practice self-care living with a chronic illness